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Wednesday 3 August 2011

Bit late tonight

It's 2 am and I'm not ready to sleep and since I haven't recorded todays food etc this seemed a logical place to come.
I've had chance to have a think about yesterday and the GP appointment.
And the more I refect, the more I wonder if the GP is just a bit out of date...
When I was diagnosed three years ago I had a blood test which showed a strong likelihood and then this was followed up with a colonoscopy which confirmed it.
Coincidentally, at the same time my GP ordered my tests because I was always anaemic and had pernicious anaemia my mum, across the country, had been to her GP because of gastric issues.
He too ordered a blood test, which showed a strong possibility. My mum then cut gluten from her diet, despite me telling her not to, so when she had the biopsy/ colonoscopy it was inconclusive. Her GP though was happy to accept that it was probably a coeliac issue, and felt that the blood test was diagnostic.
Friend have sent me peer reviewed research which suggests that this makes sense.
Since then, many authorities have started to accept the blood test as diagnostic - this is important because you then get food on prescription - which, as he's a child, would be free (only it wouldn't because we don't live all year in the UK).

So in retrospect, I'm wondering if what the GP was actually saying was that there's no benefit to doing the blood test as no one will want to do the colonoscopy on such a small boy, and you'd need the colonoscopy to get the free prescriptions.


With that thought in mind, I guess it makes sense not to bother distressing him with a blood test, except that's not the point. I want to know if it's coeliac because there's a chance there's a calcium issue, a chance it's the reason he's so small, a reason his teeth are so bad, and he might need more than just "keep off the gluten".


Anyway, lovely day today - poor food though.


Breakfast - toast and jam
Lunch - chicken and chips and a fruit winder - he ate little
Afternoon snack - pom bears and a cornetto - he ate about 1/3rd, none of the cone bit
Supper - It was so hot and muggy he barely ate, a few potatoes, a bit of salad and a doughnut


One really bad nappy at breakfast time.

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